Briefing Paper 17
The social consequences of sickle cell and thalassaemia: improving the quality of support. February 2010
Sickle cell and thalassaemia are some of the UK's most common genetic inherited conditions, with sickle cell disorder predominant amongst individuals of West/Central African or African Caribbean heritage, whilst thalassaemia is more common amongst people of Mediterranean and Southern European, Asian, Middle Eastern and Far Eastern origin. Although screening for the disorders has improved and is increasingly common, racism still has an impact upon treatment and care for black and minority ethnic people. There is evidence that myths and stereotypes, primarily regarding African and Caribbean patients, influence health practitioners' perceptions of the pain experienced by patients. The paper also highlights the social consequences of the conditions, such as for children in education, arguing that culturally sensitive care, information and support are essential to ensure that carriers are able to make informed decisions regarding their healthcare needs.
Author(s): Karl Atkin, Elizabeth N. Anionwu
[Briefing Paper]

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Briefing Paper 16
Ethnicity and coronary heart disease: making sense of risk and improving care. February 2010
Cardiovascular disease (CVD) is predicted to become the dominant cause of death and disability across the globe over the next decade. With an apparently disproportionate susceptibility to cardiovascular disease, the causes and prevention of CVD is of critical importance to minority ethnic groups. This paper examines the complex interplay between the biological, psychosocial and behavioural causes of CVD, and considers the need for culturally appropriate services to increase awareness of coronary risk factors and support healthier lifestyles.
Author(s): Felicity Astin, Karl Atkin
[Briefing Paper]

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Briefing Paper 14
Experiences of bullying and racial harassment among minority ethnic staff in the NHS. November 2009
Bullying and harassment is a persistent experience for many workers in the NHS. But black and minority ethnic staff across all staff groups have disproportionate experiences of bullying and racial harassment. Despite the initiatives put in place, bullying and racial harassment are also under-reported, meaning that workers remain unsupported, often suffering poor health as a result.
Author(s): Laia Bécares
[Briefing Paper]

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Cancer incidence and survival by major ethnic group, England, 2002-2006
Cancer Research UK and National Cancer Intelligence Network, June 2009
This report provides a breakdown of cancer incidence and survival by ethnic group. Whilst no epidemiological explanations are given for the data, it provides a comprehensive source of data.
[Health Resource]

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Briefing Paper 13
HIV prevention among black Africans in England: a complex challenge. April 2009
This paper is about the HIV epidemic in the context of black Africans in England. It gives an overview of the current epidemiological status, HIV support and prevention needs and recommendations for policy and practice. It focuses on black African communities because they are disproportionately affected by HIV compared to other minority ethnic groups.
Author(s): John Owuor
[Briefing Paper]

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Briefing Paper 8
Long-term ill health, poverty and ethnicity. February 2008
This paper examines the social and economic consequences of long-term ill health. These are often greatest for deprived groups and certain minority ethnic groups, as not only do they face the highest rates of long-term ill health and worklessness, but they are also most marginalised from support services. With a benefits system deemed complex, unpredictable and stressful, take-up of sickness-related benefits amongst black and minority ethnic groups is low, whilst policies and services aimed at encouraging people into employment can have negative impacts upon health or caring obligations.
Author(s): Kaveri Harriss, Sarah Salway
[Briefing Paper]

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The Reaching Out Project: Report on preliminary consultations May - July 2005
Gaudion, A., Maternity Alliance and Medact, June 2006
This report gives a summary of ‘Reaching Out’, a pilot project to improve access to maternity services for highly marginalised black and minority ethnic women.  The project targeted pregnant women and families with young infants to discern their healthcare needs, and improve access to support services, benefits and antenatal and postnatal care.
[Health Resource]

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The health status of Gypsies and Travellers in England
Glenys Parry, G.; Van Cleemput, P.; Peters, J.; Moore, J.; Walters, S.; Thomas, K.; and Cooper, C., School of Health and Related Research, University of Sheffield, October 2004
A team of health services researchers from the University of Sheffield, aided by Gypsy Travellers and health service staff, conducted a large-scale epidemiological study using standard health measures, supplemented by in-depth interviews to explore health experiences, beliefs and attitudes. A survey of Primary Care Trusts and Strategic Health Authorities in England addressed health planning and provision forThis ethnic minority group.
[Health Resource]

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The meanings of cancer and perceptions of cancer services among South Asians in Luton, UK
Randhawa, G., and Owens, A., Cancer Research UK, British Journal of Cancer, 91(1), July 2004
This study examines the knowledge, awareness and attitudes of South Asians in Luton towards cancer and cancer services.
[Health Resource]

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Relation between racial discrimination, social class, and health among ethnic minority groups
Karlsen, S., and Nazroo, J. Y., American Journal of Public Health,92(4), April 2002
This study explores associations between racism, social class, and health among ethnic minority people in England and Wales. Marked independent associations existed between reported experience of racism and perceptions of Britain as a “racist society”, household social class, age, sex, and various mental and physical health indicators. These associations showed reasonable consistency across the different ethnic groups.
[Health Resource]

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Palliative care, cancer and minority ethnic communities: A literature review
Johnson, M. R. D., Mary Seacole Research Centre, Working Paper No.5, May 2001
This study considers the issue of delivering palliative care equitably in a multi-ethnic, multi-cultural society. It provides a review of the literature relating to ethnicity and cancer.
[Health Resource]

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Ethnic differences in physical activity and obesity

This paper uses the Health Survey for England (HSE) and the results of three focus groups of Pakistani and Kashmiri women to examine ethnic differences in diet, physical activity and obesity in adults.  The report examines gender differences in obesity levels and physical activity in eight ethnic groups, taking into account individual and local factors that may also influence health outcomes.
[Health Resource]

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A qualitative study of the health experience of Gypsy Travellers in the UK with a focus on terminal illness
Jesper, E.; Griffiths, F.; and Smith, S., University of Warwick, 2008
This study considers the experience of terminal illness and health care access for Gypsy Travellers, and provides guidance to inform palliative and primary care service provision.
[Health Resource]

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Indications of public health in the English regions 4: Ethnicity and health
Jacobson, B.; Fitzpatrick, J.; and Aspinall, P., Association of Public Health Observatories, 2005
This report provides a comprehensive regional analysis of inequalities in health and health care between ethnic groups in England, and also examines workforce data by ethnic group. It includes a broad range of statistics including educational attainment, provision of free-school meals, and employment status.
[Health Resource]

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How physically active are South Asians in the United Kingdom? A literature review
Fischbacher,  C. M. Hunt, S.  and Alexander, L., Journal of Public Health, 26(3), 2004
This literature review examines levels of physical activity and fitness in the South Asian population of the UK.  Different studies used different methods of assessing physical activity and fitness, but all  studies reported lower levels among South Asian groups.
[Health Resource]

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Better services, better health: The healthcare experiences of black and minority ethnic disabled people
Shah, S. and Priestley, M., Leeds Involvement Project, 2001
This easy-to-read qualitative study investigates the healthcare experiences of disabled people from ethnic minorities.  The report highlights issues such as limited cultural competence, racism, disabilism, isolation and communication.
[Health Resource]

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Cancer Research UK- ethnicity
A collection of news stories and links relating to cancer prevalence amongst different ethnic groups.  The site also provides access to a small collection of translated leaflets which provide information on cancer.
[Weblink]

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Care Quality Commission
The Care Quality Commission is the new health and social care regulator for England. Its aim is to look at the joined up picture of health and social care, and ensure better care for everyone in hospital, in a care home and at home.
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NHS Clinical Knowledge Summaries - Home
The NHS Clinical Knowledge Summaries are a reliable source of evidence-based information and practical 'know how' about the common conditions managed in primary care. They are aimed at healthcare professionals working in primary and first-contact care.
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NHS Evidence - Ethnicity and health
NHS Evidence provides resources relating to the specific needs healthcare needs of migrant and minority ethnic groups. 
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NICE
NICE is an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health.
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Organ Donation and Transplantation Directorate- Publications
The Organ Donation and Transplantation Directorate has a number of publications, including factsheets in community languages and a collection to examine the views of the major world religions towards organ donation. 
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Ouch!
Ouch! is a website from the BBC that reflects the lives and experiences of disabled people. It has articles, blogs, a messageboard and a downloadable radio show. It's aimed at those with a stakehold in disability: family, friends, professionals and, rather importantly, disabled people themselves.
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Social Care for Excellence - Black and Minority signposting
One of SCIE's key objectives for 2006-09 is to address gaps and inadequacies in service provision for black and minority ethnic groups and seldom-heard groups. As part of this commitment, they have reviewed their publications, resources and websites, and prepared a brief synopsis of each product that includes black and minority ethnic content. 
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UK Centre for Evidence in Ethnicity, Health and Diversity
The CEEHD was established in 2001 as part of the ESRC research network for evidence-based policy and practice.  The Centre is located in the Warwick Medical School and The Mary Seacole Research Centre at De Montfort University, Leicester. CEEHD supports interdisciplinary, collaborative research in the field of ethnicity and health, working with Trusts, community groups and other academic centres.
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